Tag: caregiving

  • No Pets Allowed: But What About People Who Need Them?

    Caregivers, Quiet Discrimination, and the Illusion of peace!

    I live in a community that has rules. Reasonable, right? Except these rules revealed themselves slowly—quietly—like a trapdoor under a welcome mat. It started with a photo of a kitten posted in the residents’ WhatsApp group. The kitten was adorable. But the mood turned quickly. “Against the rules,” someone said. My civic-minded self asked, “What rules?” A representative from the management company dutifully posted a list. I didn’t read most of it—but one line jumped out like a slap: “No pets allowed.”

    And just like that, I had a dose of outrage bloom in me.

    I had two immediate questions:
    Do I live in a community that is designed to exclude the vulnerable?
    Would a visually impaired resident with a guide dog be told they don’t belong?
    Would a child who needs an emotional support animal be deemed a policy violation?

    The response from the group? Swift and surgical.
    “This is exactly why I moved here—I don’t like pets.”
    And that, right there, is the problem. Not the dislike of animals. But the weaponized apathy.

    The mighty, indifferent to vulnerability, came out guns blazing to defend their comfort. No reflection. No nuance. No pause to ask—what does this mean for someone other than me?

    I couldn’t help but wonder:
    What level of ignorance allows a community to design itself around convenience while actively shutting out anyone who lives differently?What kind of person is so threatened by say a Gold fish in a sealed jar in someone else’s house?

    We talk about inclusion as if it’s a poster, a slogan, or a campaign. But this—this is where it starts. In the fine print. In the silence of rules. In the hearts of people who have convinced themselves that they cannot imagine another person’s life.

    One of my neighbors messaged me, half-joking: “Do you even have a pet?”
    “No,” I replied, “but I have a brain that can imagine someone who needs one—out of necessity.”

    It was shortly after that exchange that I began to really see my surroundings.
    There was a child on my block who, every evening at nearly the same time, banged on a window restrainer. The sound was jarring, repetitive, impossible to ignore. At first, I was simply irritated. But then, I noticed the pattern—intentional, rhythmic, it became familiar.

    It dawned on me that this might be a child with needs that differ from what society calls “normal.” And in that moment, I changed the way I heard that banging.

    I decided it would become music to me. A part of the sonic texture of this place, no different from the soft, occasional sound of a neighbour’s musical instrument—I think it’s an organ. When they play, it’s like heaven. I often wish they would play it more. Daily, in fact. It soothes deeply.

    And it struck me: what if we trained ourselves to hear difference not as disruption, but as part of the human chorus? What if instead of designing communities that shut out the inconvenient, we softened our hearing—so that empathy could find a small space in our minds?

    It didn’t take long before I met the child—the beautiful interrupter of my ‘normal.’ I suspect he’s the one behind the music of window restrainer -bangs. I say suspect, because I don’t really know. And here, I am as guilty as anyone else—drawing conclusions based on sound and timing. It might be him. It might not.

    I was out in the yard, hanging laundry, when a skinny boy came splashing through puddles left by the rain. He was utterly absorbed in the water, joyful in a way that felt ancient and grounding. I greeted him. He didn’t respond. He just looked at me—his eyes wide with something between curiosity and watchfulness. But also… something else.

    There was a certain purity in his gaze. A soulfulness that said without words: I am not like the others—and I don’t need to be.

    A few steps behind him was his father. Distant enough to give the boy space, but close enough to watch over him. A gentle tether. The father nodded a greeting, and I—carefully, respectfully—asked if the child had a condition.

    “Autism,” he said, simply.
    His eyes asked a quiet question: How did you know?

    In that moment, I wanted To say, I hear him. I hear this little window banger – music maker. And I see you – the way you walk far enough to give him freedom and close enough for ensure safety. I wanted to hand him flowers – for being present – for showing up for his son every day. But instead, I turned back to my laundry—folding cotton and holding reverence in silence.

    I moved to this community for the quiet. For the river nearby. For the stillness I thought would cradle my writing. And in many ways, it does. But stillness, I’ve come to learn, is not the same as wholeness. Behind the trimmed hedges and tidy rules, I’ve discovered another kind of noise here—the low, persistent hum of systems that overlook, exclude, and deny. An indifference to vulnerability that yanks at my being. The illusion of privilege politely dressed as “community rules.”

    What is policy without humanity?
    What is order, if it protects convenience but sacrifices care?

    Caregivers walk among us—tired, brave, unseen. Children with different needs live here too, as whole and radiant as any of us, even if the rules deny them pets as companions.

    The real question isn’t whether a community is quiet.
    It’s whether it’s kind. Whether it is designed with enough imagination to embrace those who experience the world differently and honour ways of being that do not follow the usual script. I, want to live in a place where difference doesn’t need permission to belong.

  • The Truth About Caregiving: Love, Loss, and the Strength to Stay

    The strange kind of love – Reflections on caregiving

    Last week I posted something on social media about caregiving.

    They don’t tell you that caregiving is a strange kind of love. You watch your loved one fade like the setting sun — while you are supposed to shine like sunrise. It is also love in the purest form.  

    I didn’t expect the wave that followed. Now I feel that the moment is ripe to deepen the conversation with clarity and hopefully some grace, for I clearly touched a nerve in many different ways.

    Many replied with quiet tears: “Me too.”
    Others, with concern: “But what about your own life, are you ok?’’
    And a few, with sharp practicality: “It’s a waste of time, energy, money.”

    Those who are living it

    For those who are living it. You don’t need me to explain this kind of love. You’re living it. You’ve learned that time bends — that a single hour can feel like a year when the person you care for no longer knows your name, or repeats the same question twelve times before breakfast.

    You’ve felt that pang — the one where love is still strong, but recognition is gone. And yet, you carry on. You show up. You hold the line between memory and forgetting.

    I see you. And more importantly — you are not invisible to your loved one and others who give care.

    My mum no longer remembers my name — she calls me Mummy, the same way I’ve always called her. It’s her strange, beautiful gift to me.
    If she ever calls me by name, especially at night, we know something’s wrong. My name has become a signal — not of recognition, but of pain. A quiet plea for help.

    For those who fear it

    Some asked: “What about your dreams?”
    “Isn’t this a kind of death sentence?”

    I understand where that comes from. It can be hard to watch someone devote their life to a role that demands so much and gives back so little in tangible terms.

    And yes — it’s hard. It can feel like a slow erasure of the self. But that doesn’t mean it’s a dead end.

    Caregiving didn’t kill my dreams.
    If anything, it lit a fire under them. Gave them purpose. Clarity.
    It stripped away the noise — all the distractions, the vanity goals, the borrowed ambitions I once mistook for my own.

    In caring for someone else so completely, I finally saw what I was meant to fight for. This wasn’t an excuse to give up — it was my liberty card. Not the kind we wave when we want out, but the kind we earn when we finally understand what matters.

    For some of us, caregiving isn’t the death of our lives — it’s the rediscovery of what matters. It’s a different kind of becoming. A quieter kind. A harder kind. But not lesser.

    For those who call it a waste of time, I guess money and emotions too!

    I won’t argue. I simply offer this: Not all value is transactional. Not all time has to earn. And not all love must be proven with profit.

    Some things are sacred — not because they are easy, but because they strip us down to our essence and ask us: Who are you, when no one claps?

    That’s what caregiving does.
    It’s not just about caring for someone else — it strips you bare and shows you who you really are. It reveals the self.

    And to put it in terms that might land better: adulthood is a scam.
    Maybe love won’t scam you — not the real kind — but life will.
    You will be scammed. By duty, by capitalism, by expectations dressed up as dreams.

    I’ve simply chosen my scam.
    Caregiving is the one I picked with my eyes open.
    You get to choose yours too.

    For those of us who will stay.

    I don’t romanticise caregiving. I know the toll. The isolation. The fury. The bone-deep fatigue. But I also know the quiet, searing beauty of being someone’s anchor when they are lost to themselves.

    Caregiving isn’t for everyone. It shouldn’t have to be. But for those of us who walk this path — by choice or by circumstance — let it be known:

    This is not a waste.
    This is not weakness.
    This is love — strange, costly, inconvenient, and transformative.

    Last word.

    If you’re caregiving, or considering it, or afraid of what it might make of you — welcome. There’s room here for your story. Your fear. Your grit. Your grief. Your uneven strength.
    We don’t have to agree on everything.
    But we can choose to hold space — for each other, and for the versions of ourselves we’re still becoming.

    Because in the end, that’s what caregiving teaches us:
    How to hold.
    Even when it hurts.
    Even when it fades.
    Even when it’s never returned.

    And maybe, in this fractured world, that’s the most radical thing left to do.

    If you’re walking this caregiving path too — or just want to connect — I’d love to hear from you.
    You can leave a comment below or reach me via the contact page.